The issues

Not haveing a diagnosis or having a child with a rare condition often equates to being in Limbo land. It is an unknown destiny with unforeseen challenges full of uncertainty, confusion and isolation.

It can be a journey that consists of the;

  • Frustration
  • Grief
  • Anxiety
  • Emotion vulnerability
  • Depression
  • Denial
  • Uncertainty
  • Confusion
  • Isolation
  • Guilt
  • Relationship breakdown
  • Guilt

Please seek professional help if you are struggling to cope. It sometimes takes a bit of trial and error to find the right person to assist you.