SWAN committee of management
Welcome to the SWAN Committee. My name is Heather and founder of SWAN Australia. My daughter is my inspiration and fuels my passionate to continue to support and advocate for SWAN families. I would like to see all our SWAN families receive a diagnosis for their undiagnosed children.
I am also a member of the Croxton School Council and member for the Melbourne Genomics Health Alliance Community Advisory Group.
Hello, my name is Tim and I am studying to be a social worker. I am also father to a beautiful daughter who has a rare disease.
I work in the finance sector and enjoy being able to share my skills with SWAN and assist them with their annual reporting.
Hi! My name is Dani and I am Mum to a 4 year old son who has recently been diagnosed.
As an paediatric occupational therapist I have always been passionate about the health and wellbeing of infants, children and adolescents.
Since having my own child with an undiagnosed genetic disorder and disability, my passion and drive to be an advocate for my son and others like him has only grown.
I hope to assist other SWAN families in connecting with one other, to navigate our often tricky health care system and to create greater community awareness of SWAN kids all around Australia.
I am mum to 9 year old Victoria who has a rare condition and who keeps us very busy.
My name is Ali and I have 2 children, one who is very unique but extremely cute! I am also a social worker and enjoy helping people on their life journey.
My Name is Allison and I am studying to be a genetic counsellor. I am enjoying my course and looking forward to working as a genetic counsellor next year.
Hi my name is Megan and I have 3 kids, Devon my middle child has a rare genetic condition. I work in the parent support field and are studying to be a social worker.