Our History

SWAN Australia

SWAN Australia was established late 2012 with the aim of assisting parents who had a child an undiagnosed or rare genetic condition. We wanted to provide support, information, and advocacy to SWAN families on their unknown journey.

SWAN UK

SWAN UK was originally established as a charity in 1999 by a SWAN grandmother. It was adopted in 2011 by the Genetic Alliance UK which continues to this day to offer support to undiagnosed families.

SWAN USA

SWAN USA was originally established as an e-support group in 2001 to provide support to families experiencing the uncertainty of an undiagnosed conditions. It transposed formally into a not-for-profit organisation in 2006.