Purpose & goals

Our purpose is to:

  • Offer emotional support for parents/cares who have a child/children without a diagnosis.
  • Be able to listen to parent/carer stories and share the good and not so good parts of parenting a SWAN child.
  • Provide information to parents/cares who have a child/children without a diagnosis.
  • Advocate for more funding for genetic research so more testing is available, turnaround time on testing is decreased and more accurate results are obtained.
  • Advocate for better resources and pathways for our child/children without a diagnosis.

Our goals are:

Based on the needs identified by SWAN UK, SWAN Australia aims to:

  • Develop a community of families with undiagnosed genetic conditions for mutual support and information sharing.
  • Develop a network of health and social care professionals with expertise in undiagnosed conditions.
  • Increase awareness and understanding of undiagnosed genetic conditions.
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